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Annie Kennedy, chief of policy, advocacy, and patient engagement at the EveryLife Foundation for Rare Diseases, tells us why the Foundation sponsored The National Economic Burden of Rare Disease ...
Isla Hunter is like a newborn in a six-year-old's body, and she's living on borrowed time.
With Brineura, indicated for the treatment of children with Batten disease (or CLN2 disease), this discrepancy was a contributing factor. Although CLN2 disease is an ultra-rare disease based on ...
Kennedy, a longtime critic of vaccination, has made the study of autism one of HHS’s primary goals under his tenure. The department’s Centers for Disease Control and Prevention has launched a ...
A 22-year-old thief named for the late John F. Kennedy has caused an uproar in Peru by escaping from prison, shouting out thanks to God as he dashed to freedom, according to video footage that has ...
Nonalcoholic fatty liver disease (NAFLD) can be reversed with several lifestyle changes, including diet and physical activity. NAFLD is a condition where fat builds up around the liver and is ...
Elizabeth Cooney is a cardiovascular disease reporter at STAT, covering heart, stroke, and metabolic conditions. It starts with the ticks. These bugs infect people with the bacteria that cause ...
which aims to provide a robust and secure computational data platform for chronic disease and autism research," he said, per the outlet. This news comes on the heels of statements Kennedy made at ...
In a letter to Health and Human Services Secretary Robert F. Kennedy Jr., Sen. Shelley Moore Capito (R-W.Va.) pushed back on decisions that cut an office and workers seeking to support coal miners ...