资讯
Passage of the bill — which cuts critical health coverage for people with cystic fibrosis and their families — shows the ...
This report offers key insights from last year’s CF Foundation Patient Registry data. The Registry includes data from people with CF in the United States who visit CF care centers and agree to ...
We facilitate the development of promising drugs and therapies for people with CF. Clinical trials that test these potential therapies are a major part of CF research, and they take place at ...
Going to college while living with cystic fibrosis carries its unique challenges. One of these is learning to be vulnerable about CF with others. But as I learned to be open, I discovered that CF did ...
The Impact of the CF Community This month is a celebration of you — the individuals, families, and supporters who make up the CF community. You can join us by sharing your accomplishments, milestones, ...
The machine is made up of two pieces, an air-pulse generator and an inflatable vest that is connected to the generator by hoses. The generator sends air through the hoses, which causes the vest to ...
CFTR modulators have been approved by the U.S. Food and Drug Administration (FDA) for people with the specific CF mutations. The first step in knowing whether you can take these drugs is to know your ...
The Western New York Chapter of the Cystic Fibrosis Foundation welcomes you! Our chapter covers Buffalo, Rochester, and the surrounding areas. Volunteers are the key to our success and the lifeblood ...
To ensure that people with CF continue to experience steady gains in length and quality of life, the Foundation helps its accredited care centers provide a standard of CF care with guidelines. We base ...
Training for an Ironman race is no easy feat, especially when living with cystic fibrosis. But I'm more determined than ever to push my limits, make my younger self proud, and prove to others that ...
The CF Foundation has been closely monitoring the COVID-19 pandemic and how it may affect people with cystic fibrosis and their families. Resources are available to help inform and provide a sense of ...
What Is Gene Therapy? The cystic fibrosis transmembrane conductance regulator (CFTR) gene contains the instructions for making the CFTR protein. When there is a mutation — or alteration — in the ...
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