资讯

Hympavzi is now approved in the U.K. for the prevention of bleeds in adults and adolescents with hemophilia A or B, without ...
A spontaneous hematoma reminds columnist Jennifer Lynne of the importance of taking all symptoms and bleeding seriously with hemophilia.
Approvals for Hemgenix were backed by data from the HOPE-B study that tested a single dose in people with severe hemophilia B ...
Healing isn't just physical, writes Kevin Leurquin. It's emotional and creative, too. That's where the power of optimism ...
Columnist Joe MacDonald's son Caeleb, preparing to move into a dorm, expresses concerns about living independently for the first time.
Lila is a Science Writer at BioNews. She completed her PhD in neuroscience at the University of Washington, where she studied ...
Kevin Leurquin is from Green Bay, Wisconsin. He enjoys spotlighting positivity through his food truck, Captain Quesadilla, ...
It’s easy to forget the bad things that have happened — the things that have shattered you and left you breathless. The things that destroyed you. Time has a strange way of dulling the pain, of ...
The gene therapy BBM-H901 (dalnacogene ponparvovec) has been approved in China for adults with moderate to severe hemophilia B, making it the first approved gene therapy for the disorder in the ...
Columnist Alliah Czarielle's daughter's kindergarten graduation was a celebration of all their family has achieved, even with hemophilia.
I have vivid memories of visiting Grandma Jala. She lived in the little wooden house where she raised my dad and his three brothers after Grandpa died at a young age. The tiny house, worn by time, ...
Over the weekend of April 4-6, I had the privilege of attending the National Outreach for von Willebrand (NOW) Conference in Phoenix. Hosted by Arizona Bleeding Disorders and sponsored by CSL Behring, ...