Dubai today hosted the Third International Conference of the Emirates Rare Diseases Society.Held in cooperation with the ...
An England-wide study of over 58 million people has identified eight rare diseases that carry significantly increased risks for COVID-19-related mortality in fully vaccinated individuals.
Families of rare disease patients appeal to PM Modi and Health Minister for increased treatment funding support.
Inspired by the rare disease community’s passionate drive to advance policies that provide equitable access to care, UCB spearheaded Aspire4Rare: a global initiative supporting the development of ...
High-quality evidence for the treatment of very rare diseases: IQWiG is involved in the EU project RealiseD Developing clinical trials to provide good evidence for very rare diseases, so that ...
In this webinar, sponsored by IPG Health, we will explore the role that cell and gene therapies can play in treating rare ...
Advocacy groups urge Health Ministry to intervene urgently in delayed funding for rare disease treatments, impacting patients ...
Bushra Sumra's career highlights the profound impact that expertise in clinical research and regulatory compliance can have ...
In honor of Rare Disease Day on February 28, 2025, we will publish a series of posts throughout the month on As Prescribed ...
A new binding decision in Bulgaria could add millions of leva to the health budget of one of the poorest EU countries, as ...
Through policy framework shifts, appeals to the court for rare disease funds, and starting a centre in Bengaluru, Prasanna ...