“We thought she may need glasses,” says Craig. But after weeks of testing, she was diagnosed with juvenile Batten disease. “That took us to our knees,” says Craig. “We went from thinking ...

A charity walk is to be held to raise funds to help support a Doncaster youngster battling a terminal genetic disease.Five ...

Kennedy Hansen, a funny, loving child, inexplicably begins to fall. It takes years for the diagnosis: Juvenile Batten Disease, an extremely rare, terrible, and terminal prognosis. There is no cure ...

Her son, Isaac, eight, had CLN2 Batten disease diagnosed in August 2021. It is an incurable condition which causes childhood dementia, epilepsy and loss of sight. Ms Tilley said: "It is agonising.