The only drug that treats children with a rare degenerative disease called Batten disease could be withdrawn within the next ...

Patient-driven research Batten disease refers to a group of inherited nervous system disorders in which a child lacks a crucial enzyme that breaks down and recycles cellular waste. Also known as ...

Anna Lowri Roberts, from Sarn Mellteyrn, in Gwynedd, was diagnosed with CLN3 Batten Disease in May 2022. The illness is a ...

The community has rallied around the family of a young girl diagnosed with an extremely rare degenerative condition.

The only drug that treats children with a rare degenerative disease called Batten disease could be withdrawn within the next few months if negotiations over its price fail.

The exact number of kids with Batten disease remains unknown; however, some researchers have estimated it affects around three out of every 100,000 children in the U.S. Two of Tracy VanHoutan's ...

The two boys will be participating in the 5K along with their cousins, Korry Sharp, 19, and Rachael, 16, who both have Finnish Late Infantile Batten Disease. For the boys, it”s a chance to spend ...

Get Instant Summarized Text (Gist) Batten disease, a fatal neurodegenerative condition in children, also affects the enteric nervous system, leading to severe gastrointestinal issues. Gene therapy ...

Researchers at WashU Medicine have described the neurodegeneration that occurs in the nervous system of the bowel in Batten disease, a rare and fatal genetic condition. In their latest study ...

Anna Lowri Roberts, from Sarn Mellteyrn, in Gwynedd, was diagnosed with CLN3 Batten Disease in May 2022. The illness is a fatal neurological disorder that usually begins in childhood. The strain ...

Anna Lowri Roberts is one of 39 people in the UK with CLN3 Batten Disease The mother of a terminally ill 11-year-old has spoken of her heartbreak at knowing her daughter may not live past her teens.