The community has rallied around the family of a young girl diagnosed with an extremely rare degenerative condition.

Anna Roberts, 11, is one of just 39 people in the UK with the CLN3 strain of Batten Disease.

Researchers at Washington University School of Medicine in St. Louis have described the neurodegeneration that occurs in the ...

Eight-year-old Amelia Carroll, of Poynton, Cheshire, has Batten disease, which is incurable and causes seizures, visual impairment and mobility loss. Her brother, 11, who has the same condition ...

Anna Lowri Roberts is one of 39 people in the UK with CLN3 Batten Disease The mother of a terminally ill 11-year-old has spoken of her heartbreak at knowing her daughter may not live past her teens.

The exact number of kids with Batten disease remains unknown; however, some researchers have estimated it affects around three out of every 100,000 children in the U.S. Two of Tracy VanHoutan's ...

The two boys will be participating in the 5K along with their cousins, Korry Sharp, 19, and Rachael, 16, who both have Finnish Late Infantile Batten Disease. For the boys, it”s a chance to spend ...

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Gail Rich's daughters Nicole and Jessica, from Newcastle, were both diagnosed with the rare incurable condition known as Batten Disease. Nicole died from complications linked to it in 2023 ...

James Murray is running the Inverness Half Marathon next month to support Sophie’s Story, set up for little Sophie Mason who ...