资讯

Cystic Fibrosis Foundation1月
CF & Vulnerability in College
Going to college while living with cystic fibrosis carries its unique challenges. One of these is learning to be vulnerable about CF with others. But as I learned to be open, I discovered that CF did ...
Cystic Fibrosis Foundation1月
CF Foundation Condemns Senate-Passed Reconciliation Bill
Passage of the bill — which cuts critical health coverage for people with cystic fibrosis and their families — shows the ...
Cystic Fibrosis Foundation3 年
Research and Clinical Trials - Cystic Fibrosis Foundation
We facilitate the development of promising drugs and therapies for people with CF. Clinical trials that test these potential therapies are a major part of CF research, and they take place at ...
Cystic Fibrosis Foundation3 年
Western New York Chapter - Cystic Fibrosis Foundation
The Western New York Chapter of the Cystic Fibrosis Foundation welcomes you! Our chapter covers Buffalo, Rochester, and the surrounding areas. Volunteers are the key to our success and the lifeblood ...
Cystic Fibrosis Foundation8 天
My Ironman Journey With Cystic Fibrosis
Training for an Ironman race is no easy feat, especially when living with cystic fibrosis. But I'm more determined than ever to push my limits, make my younger self proud, and prove to others that ...
Cystic Fibrosis Foundation10 天
Gene Therapy for Cystic Fibrosis
Cystic fibrosis is caused by mutations in the gene responsible for producing the cystic fibrosis transmembrane conductance regulator (CFTR) protein. For this reason, scientists are exploring ways to ...
Cystic Fibrosis Foundation4 年
Maryland Chapter - Cystic Fibrosis Foundation
The Maryland Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved.
Cystic Fibrosis Foundation10 天
CF Awareness Month - Cystic Fibrosis Foundation
During CF Awareness Month this May, we are inspired by every person with cystic fibrosis and members of the CF community who support them. This year, we are especially proud to celebrate our 70th ...
Cystic Fibrosis Foundation3 年
Wisconsin Chapter - Cystic Fibrosis Foundation
The Wisconsin Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved.
Cystic Fibrosis Foundation2 年
CFTR Modulator Therapies - Cystic Fibrosis Foundation
Cystic fibrosis transmembrane conductance regulator (CFTR) modulator therapies are designed to correct the malfunctioning protein made by the CFTR gene. Because different mutations cause different ...
Cystic Fibrosis Foundation3 年
Chest Physical Therapy - Cystic Fibrosis Foundation
With chest physical therapy (CPT), the person gets in different positions to use gravity to drain mucus (postural drainage) from the five lobes of the lungs. Each position is designed so that a major ...
Cystic Fibrosis Foundation2 年
Upcoming Events - Cystic Fibrosis Foundation
Join us for one or more of these upcoming events! In this session, participants can discuss the many ways cystic fibrosis might affect their everyday lives — such as paying for healthcare, dealing ...