Children whose cystic fibrosis is caused by a rare gene variant are excluded from a new treatment which could potentially ...
Some people with cystic fibrosis still do not have access to the life-changing modulator therapy drugs, despite wider EMA ...
Patients aged 6 to 11 years with cystic fibrosis receiving 24-week once-daily vanzacaftor/tezacaftor/deutivacaftor generally ...
A Wicklow mother is among a concerned group of parents who are calling for individual trials of the modulator therapies for ...
Big Issues Changemakers in health and disability are working to improve the lives of those marginalised by society.
I spent my childhood and young adulthood being told I was “too young and healthy” to be dealing with the health issues I experienced. But as an adult, I was determined to find answers, and eventually, ...
I’m A Celebrity…Get Me Out Of Here star Reggie Bird has opened up about caring for her son with cystic fibrosis and says she ...
Julian throughout his life has witnessed the low moments for patients while in hospital. For families to visit and spend time ...
RTE Room to Improve viewers were moved to tears tonight as an old home was transformed into something “amazing” for Cystic ...
Its Respiratory Advisory Committee has recommended funding with high priority for children aged two to five years. The medicine is currently only funded for ages six and up Cystic Fibrosis NZ CEO Lisa ...
Fund provides critical aid to cystic fibrosis community impacted by wildfiresLos Angeles, CA, Jan. 27, 2025 (GLOBE NEWSWIRE) -- In response to the ongoing devastation caused by wildfires in Greater ...