Grayson Naff was diagnosed with Batten disease last year - a group of rare genetic conditions that cause the brain to gradually shut down over five to ten years. His mother, Emily Blackburn ...

The only drug that treats children with a rare degenerative disease called Batten disease could be withdrawn within the next few months if negotiations over its price fail. Batten disease ...

The community has rallied around the family of a young girl diagnosed with an extremely rare degenerative condition.

James Murray is running the Inverness Half Marathon next month to support Sophie’s Story, set up for little Sophie Mason who ...