The community has rallied around the family of a young girl diagnosed with an extremely rare degenerative condition.

Researchers at Washington University School of Medicine in St. Louis have described the neurodegeneration that occurs in the ...

Anna Roberts, 11, is one of just 39 people in the UK with the CLN3 strain of Batten Disease.

The exact number of kids with Batten disease remains unknown; however, some researchers have estimated it affects around three out of every 100,000 children in the U.S. Two of Tracy VanHoutan's ...

The two boys will be participating in the 5K along with their cousins, Korry Sharp, 19, and Rachael, 16, who both have Finnish Late Infantile Batten Disease. For the boys, it”s a chance to spend ...

Eight-year-old Amelia Carroll, of Poynton, Cheshire, has Batten disease, which is incurable and causes seizures, visual impairment and mobility loss. Her brother, 11, who has the same condition ...

Which Market Leaders Have Staked a Claim in the Brineura Market? The brineura market is served by several key industry players, with major companies including BioMarin Pharmaceutical Inc. leading the ...

Discover outperforming stocks and invest smarter with Top Smart Score StocksFilter, analyze, and streamline your ...

Anna Lowri Roberts is one of 39 people in the UK with CLN3 Batten Disease The mother of a terminally ill 11-year-old has spoken of her heartbreak at knowing her daughter may not live past her teens.