The community has rallied around the family of a young girl diagnosed with an extremely rare degenerative condition.

Anna Roberts, 11, is one of just 39 people in the UK with the CLN3 strain of Batten Disease.

Researchers at Washington University School of Medicine in St. Louis have described the neurodegeneration that occurs in the ...

Communiqué de la société THERANEXUS du 23/01/2025 - THERANEXUS ANNOUNCES ITS FINANCIAL CALENDAR FOR 2025 ...

Eight-year-old Amelia Carroll, of Poynton, Cheshire, has Batten disease, which is incurable and causes seizures, visual impairment and mobility loss. Her brother, 11, who has the same condition ...

The exact number of kids with Batten disease remains unknown; however, some researchers have estimated it affects around three out of every 100,000 children in the U.S. Two of Tracy VanHoutan's ...

Which Market Leaders Have Staked a Claim in the Brineura Market? The brineura market is served by several key industry players, with major companies including BioMarin Pharmaceutical Inc. leading the ...

Anna Lowri Roberts is one of 39 people in the UK with CLN3 Batten Disease The mother of a terminally ill 11-year-old has spoken of her heartbreak at knowing her daughter may not live past her teens.

The two boys will be participating in the 5K along with their cousins, Korry Sharp, 19, and Rachael, 16, who both have Finnish Late Infantile Batten Disease. For the boys, it”s a chance to spend ...

James Murray is running the Inverness Half Marathon next month to support Sophie’s Story, set up for little Sophie Mason who ...

Discover outperforming stocks and invest smarter with Top Smart Score StocksFilter, analyze, and streamline your ...

Gail Rich's daughters Nicole and Jessica, from Newcastle, were both diagnosed with the rare incurable condition known as Batten Disease. Nicole died from complications linked to it in 2023 ...